Table 1

Participant characteristics, mean (SD)

Total (N=196)*Women (n=113)Men (n=81)
Age (years)64.8 (8.7)64.3 (8.4)65.5 (9.0)
Education (years)16.6 (2.6)16.2 (2.6)17.2 (2.5)
Age of disease onset (years)60.5 (9.3)60.0 (8.9)61.3 (9.7)
Disease duration (years)5.2 (4.7)5.3 (5.0)5.1 (4.4)
MDS-UPDRS Part I8.8 (4.5)8.9 (4.5)8.6 (4.5)
MDS-UPDRS Part II8.7 (6.3)8.2 (6.5)9.2 (5.9)
BOSS-PDmotor6.6 (3.6)6.9 (3.4)6.4 (3.8)
BOSS-PDm-ADL7.1 (4.3)7.1 (4.0)7.0 (4.7)
NMSQ46.5 (20.9)46.8 (22.0)46.1 (18.9)
PDQ-39 total score23.6 (12.8)24.8 (12.7)21.8 (12.2)
PDQ-39 stigma subscore19.1 (21.1)21.2 (22.0)15.8 (18.5)
SSCI34.5 (10.9)35.2 (11.9)33.1 (8.5)
Mental Health Consumers’ Experience of Stigma Scale (Wahl)34.8 (6.6)35.4 (6.6)34.1 (6.4)
Stigmatization Scale (Harvey)39.2 (10.0)39.5 (10.9)38.9 (8.5)
Stigma composite (summed z-scores)−0.2 (2.4)0.0 (2.7)−0.5 (1.9)
  • 96.5% of the sample was identified as white, and <1.5% as Asian, black, or African American, American Indian/Alaskan Native, more than one race, unknown/unreported. 76.4% was identified as not Hispanic, 1.2% as Hispanic, 21.6% as other, and 0.8% as unknown/unreported.

  • *Two participants were not identified as male or female.

  • ADL, activities of daily living; BOSS-PD, Boston University Online Survey Study of Parkinson's Disease; MDS-UPDRS, Movement Disorders Society Unified Parkinson Disease Rating Scale; NMSQ, Non-Motor Symptoms Questionnaire; PDQ, Parkinson's Disease Questionnaire; SSCI, Stigma Scale for Chronic Illnesses.